Patient Engagement

We are excited to announce that registration for Global Genes LIVE! is now open! We cannot wait to engage with you virtually, both on live platforms, as well as through intimate 1:1 networking sessions.

Discover inspiring stories of hope and challenging educational insights, with all the fun of our in-person event sprinkled throughout. 

Sessions like Rare Disease Watch Parties, in partnership with The Disorder Channel, showcase the unique stories of members in our rare disease communities.

Don’t miss out on any of our exciting social media challenges before and during the event by checking out @GlobalGenes on social media, and be sure to visit  the Global Genes (un)Summit Store for your swag bag.

Register Now!

This rare disease celebration and fundraiser is like no other. Join us on Sunday, September 20 during Global Genes LIVE! and experience musical performances from special guests and rare disease changemakers like: 

Kris Allen 

Cameron James

Peter Dankleson

Gracie Van Brunt

Dustin Chapman

Hosted by Brandon Farbstein, be sure to tune in to ‘A Celebration of Hope with the Rare Disease Community Fundraiser’ on September 20, 2020 at 8pm ET. Make sure you don’t miss any event updates by RSVPing to our Facebook event!

If you haven’t registered for Global Genes LIVE! yet, check out what other sessions you’re interested in and register today.

Register Now!

Rare Disease Featured in The News

What it Takes to Lead A Disease Research foundation-Harvard Business Review