Uncategorized Manage Self Care – Webinar Registration 10 Apr 2021 Topic Self - Care for Rare Disease parents #Rare #bonnellfoundation Description Let’s gather and unwind together. The pandemic has increased the stress families in the Rare Disease community are experiencing.Please…
Uncategorized Seattle Rare Disease Fair 16 Mar 2021 SAVE THE DATE - Friday, June 4th and Saturday, June 5th, 2021 Join Born a Hero Research Foundation and Seattle Children’s Research Institute for this year’s virtual Seattle Rare Disease…
Uncategorized Phacilitate Webinar 9 Feb 2021 THE EVOLUTION OF PATIENT VOICE AND ENGAGEMENT THROUGHOUT THE JOURNEY TO COMMERCIALISATION Date: 11th February 2021 Time: 4.00pm GMT | 11.00am EST | 8.00am PST HOW INDUSTRY, BIOTECHS AND PATIENTS CAN WORK…
Uncategorized Rare Disease Day 2021 at Syneos Health 7 Feb 20219 Feb 2021 Innovation in Rare Disease: Making Progress with Cell & Gene Therapies This Rare Disease Day, Syneos Health continues the drive to raise awareness of rare diseases and their impact on…
Uncategorized Rare Across America 24 Jan 202124 Jan 2021 WHENFebruary 22 - March 5, 2021 (Virtual Congressional meetings on March 3rd and 4th)WHATVirtual meetings with your Senators and Representative AND virtual advocacy events. Rare Disease Legislative Advocates (RDLA) organizes meetings…
Uncategorized Founder & President, Tara J. Britt, Finalist in Rare Voice Awards 12 Oct 202012 Oct 2020 Thank you to the rare disease community for nominating these amazing advocates who give rare disease patients a voice on Capitol Hill and in state government. A special thanks to the members of…
Uncategorized What are the opportunities and challenges for the regenerative medicine field as the world recovers from COVID-19? 25 Aug 20202 Sep 2020 We have all been inundated by webinars, podcasts and Zoom calls focused on identifying and navigating COVID-19 challenges. Based on what we have learned from the first five months of…
Uncategorized Tara J. Britt, President of RDII, Named in 11 Most Influential Women in Advanced Therapies 21 Aug 20202 Sep 2020 Celebrating women in advanced therapies... It’s important for our industry to inspire and attract female talent and to value the contribution of women in science if we’re going to achieve…
Uncategorized Rare Disease in the News 9 Mar 20202 Sep 2020 (Left to Right) Loretta Boniti, host Tara Britt, NC Rare Disease Advisory Council, Assoc. Chair Parvathy Krishnan, Dir. of Patient Engagement, Rare Disease Innovations Institute Rare Disease is in the…