Skip to content
Rare Disease Innovations Institute

Rare Disease Innovations Institute

Search
  • Who We Are
    • Our Team
    • Industry Partners
  • Resources
    • Patient Resources
  • RDACs
  • Events
  • Contact UsQuestions, comments, concerns?
  • Who We Are
    • Our Team
    • Industry Partners
  • Resources
    • Patient Resources
  • RDACs
  • Events
  • Contact Us
DONATE

Our Mission

RDII is a global non-profit focused on educating, engaging and equipping the rare disease community. Through policy, tools and data we achieve a higher quality of life, accelerating diagnosis and enabling access and treatment

Recent Updates

Uncategorized

Seattle Rare Disease Fair

16 Mar 2021
SAVE THE DATE - Friday, June 4th and Saturday, June 5th, 2021 Join Born a Hero Research Foundation and Seattle Children’s Research Institute for this year’s virtual Seattle Rare Disease…
Uncategorized

Phacilitate Webinar

9 Feb 2021
THE EVOLUTION OF PATIENT VOICE AND ENGAGEMENT THROUGHOUT THE JOURNEY TO COMMERCIALISATION Date: 11th February 2021 Time: 4.00pm GMT  |  11.00am EST  |  8.00am  PST HOW INDUSTRY, BIOTECHS AND PATIENTS CAN WORK…
Uncategorized

Rare Disease Day 2021 at Syneos Health

7 Feb 20219 Feb 2021
Innovation in Rare Disease: Making Progress with Cell & Gene Therapies This Rare Disease Day, Syneos Health continues the drive to raise awareness of rare diseases and their impact on…
Uncategorized

Rare Across America

24 Jan 202124 Jan 2021
WHENFebruary 22 - March 5, 2021 (Virtual Congressional meetings on March 3rd and 4th)WHATVirtual meetings with your Senators and Representative AND virtual advocacy events. Rare Disease Legislative Advocates (RDLA) organizes meetings…
Uncategorized

Founder & President, Tara J. Britt, Finalist in Rare Voice Awards

12 Oct 202012 Oct 2020
Thank you to the rare disease community for nominating these amazing advocates who give rare disease patients a voice on Capitol Hill and in state government. A special thanks to the members of…
Uncategorized

What are the opportunities and challenges for the regenerative medicine field as the world recovers from COVID-19?

25 Aug 20202 Sep 2020
We have all been inundated by webinars, podcasts and Zoom calls focused on identifying and navigating COVID-19 challenges. Based on what we have learned from the first five months of…
Uncategorized

Tara J. Britt, President of RDII, Named in 11 Most Influential Women in Advanced Therapies

21 Aug 20202 Sep 2020
Celebrating women in advanced therapies... It’s important for our industry to inspire and attract female talent and to value the contribution of women in science if we’re going to achieve…
Uncategorized

Rare Disease in the News

9 Mar 20202 Sep 2020
(Left to Right) Loretta Boniti, host Tara Britt, NC Rare Disease Advisory Council, Assoc. Chair Parvathy Krishnan, Dir. of Patient Engagement, Rare Disease Innovations Institute Rare Disease is in the…

Posts navigation

Newer posts
  • Who We Are
  • Resources
  • RDACs
  • Events
  • Contact Us
Create a website or blog at WordPress.com
 

Loading Comments...