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Author: Tara Britt

Founder & President - RDII
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Seattle Rare Disease Fair & Summit 2022

20 Apr 2022
We hope you can join us for the Seattle Rare Disease Fair Virtual Conference, 2022! What: The Fair and Summit aim to educate, engage, and inspire our community about the…
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Rare Disease Day Virtual Event 2022 Recordings

11 Mar 2022
MARCH 2, 2022 Use the links below to access the recordings DAY ONE DAY TWO Life with a rare disease can have infinite milestones, setbacks, traumas and triumphs—all likely to…
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Rare Disease Day 2022

5 Feb 2022
Collaborating to Make Mental Health in Rare Disease Stigma-Free Brought to you by: Jump to the Agenda for Each Day: Monday, February 28 | Tuesday, March 1  Register Now Syneos Health® Recognizes Rare Disease…
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A Two-Day Golf Experience for Champions for a Cure Tournament

18 Jan 202218 Jan 2022
A Two-Day Golf Experience for Champions for a Cure Tournament Join us at the legendary Pinehurst No. 2 Golf Course to support children with rare genetic diseases. A Two-Day Golf…
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Well-intended measure will throttle pharma innovation

11 Oct 2021
More than one million North Carolinian patients are affected by a rare disease. Tara Britt, our founder, argues that removing IP protections from medical innovation will lead to less cures…
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Manage Self Care – Webinar Registration

10 Apr 2021
Topic Self - Care for Rare Disease parents #Rare #bonnellfoundation Description Let’s gather and unwind together. The pandemic has increased the stress families in the Rare Disease community are experiencing.Please…
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Seattle Rare Disease Fair

16 Mar 2021
SAVE THE DATE - Friday, June 4th and Saturday, June 5th, 2021 Join Born a Hero Research Foundation and Seattle Children’s Research Institute for this year’s virtual Seattle Rare Disease…
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Phacilitate Webinar

9 Feb 2021
THE EVOLUTION OF PATIENT VOICE AND ENGAGEMENT THROUGHOUT THE JOURNEY TO COMMERCIALISATION Date: 11th February 2021 Time: 4.00pm GMT  |  11.00am EST  |  8.00am  PST HOW INDUSTRY, BIOTECHS AND PATIENTS CAN WORK…
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Rare Disease Day 2021 at Syneos Health

7 Feb 20219 Feb 2021
Innovation in Rare Disease: Making Progress with Cell & Gene Therapies This Rare Disease Day, Syneos Health continues the drive to raise awareness of rare diseases and their impact on…
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Rare Across America

24 Jan 202124 Jan 2021
WHENFebruary 22 - March 5, 2021 (Virtual Congressional meetings on March 3rd and 4th)WHATVirtual meetings with your Senators and Representative AND virtual advocacy events. Rare Disease Legislative Advocates (RDLA) organizes meetings…

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