The Rare Disease Innovations Institute is proud to bring you “The Common Voice of Rare Disease”, our blog which will share stories of vision, impact and success around rare disease, nationally and abroad. See below for our latest posts or ‘continue reading’.
THE EVOLUTION OF PATIENT VOICE AND ENGAGEMENT THROUGHOUT THE JOURNEY TO COMMERCIALISATION Date: 11th February 2021 Time: 4.00pm GMT | 11.00am EST | 8.00am PST HOW INDUSTRY, BIOTECHS AND PATIENTS CAN WORK TOGETHER TO STREAMLINE THE ROAD TO COMMERCIALISATION In the rush to the clinic and in the hustle of running collections, manufacturing and logistics operations, theContinue reading “Phacilitate Webinar”
Innovation in Rare Disease: Making Progress with Cell & Gene Therapies This Rare Disease Day, Syneos Health continues the drive to raise awareness of rare diseases and their impact on patients’ lives – and to shine a light on the opportunities for cell and gene therapies in treating these disorders. Join us for an inspiringContinue reading “Rare Disease Day 2021 at Syneos Health”
WHENFebruary 22 – March 5, 2021 (Virtual Congressional meetings on March 3rd and 4th) WHATVirtual meetings with your Senators and Representative AND virtual advocacy events. Rare Disease Legislative Advocates (RDLA) organizes meetings for rare disease advocates with their Members of Congress and/or the Member’s staff. Meetings will take place virtually on March 3rd and 4th. The RDLAContinue reading “Rare Across America”
Thank you to the rare disease community for nominating these amazing advocates who give rare disease patients a voice on Capitol Hill and in state government. A special thanks to the members of the RareVoice Nominations Committee who performed the difficult task of selecting finalists in each category. The awardee for each category will be announced live at the RareVoice Awards takingContinue reading “Founder & President, Tara J. Britt, Finalist in Rare Voice Awards”
What are the opportunities and challenges for the regenerative medicine field as the world recovers from COVID-19?
We have all been inundated by webinars, podcasts and Zoom calls focused on identifying and navigating COVID-19 challenges. Based on what we have learned from the first five months of shelter-in-place and quarantine, what are the opportunities that can benefit our patient community as it pertains to clinical trials? This discussion focuses on the RareContinue reading “What are the opportunities and challenges for the regenerative medicine field as the world recovers from COVID-19?”
Celebrating women in advanced therapies… It’s important for our industry to inspire and attract female talent and to value the contribution of women in science if we’re going to achieve gender parity. It’s promising that we’ve seen women being awarded the Nobel Prize in Science, Chemistry and Medicine four times in the last six years.Continue reading “Tara J. Britt, President of RDII, Named in 11 Most Influential Women in Advanced Therapies”