| WHEN February 22 – March 5, 2021 (Virtual Congressional meetings on March 3rd and 4th) |
| WHAT Virtual meetings with your Senators and Representative AND virtual advocacy events. Rare Disease Legislative Advocates (RDLA) organizes meetings for rare disease advocates with their Members of Congress and/or the Member’s staff. Meetings will take place virtually on March 3rd and 4th. The RDLA team also helps to prepare advocates for their meetings, provides legislative resource materials, and hosts pre-meeting training webinars. |
| SCHEDULE OF VIRTUAL EVENTS Week 1: RARE Readiness Monday, 2/22: Selfie Monday—Post a picture on social media and tag #RareAcrossAmerica Wednesday, 2/24: Fast Forward for RARE Practice Your Pitch Webinar Thursday, 2/25: Virtual Rare Disease Caucus Briefing Friday, 2/26: Share Your Rare Story—Take a video and post on social media and tag #RareAcrossAmerica Week 2: RARE Rally Monday, 3/1: NIH Virtual Event Tuesday, 3/2: Prepare for Your Virtual Hill Meetings (One pagers and resources at www.RareAcrossAmerica.org) Wednesday, 3/3: Virtual Hill Meetings with Senators (12-5 pm ET) Thursday, 3/4: Virtual Hill Meetings with Representatives (12-5 pm ET) No prior experience necessary. Registration for this event and all RDLA events are free for rare disease advocates. More information at www.RareAcrossAmerica.org. SAVE THE DATE: The Rare Across America training webinar will take place on February 4th at 2:00 pm ET, First Time Advocates Webinar on February 9th at 2:00 pm ET, and the Team Leaders Webinar on February 11th at 2 pm ET. |
| REGISTER |
| For more information, visit www.RareAcrossAmerica.org or contact RDLA Program Coordinator, Katelyn Laws, at klaws@everylifefoundation.org. |
Rare Across America
