Webinar hosted by the Rare Disease Innovations Institute and IQVIA
In rare disease research, patients and families are taking a seat at the table, providing real-life perspectives that are helping to shape the development of new therapies. Sponsors, regulatory agencies, payers and health care providers alike are seeing the value of this increasing patient involvement.
In this webinar, IQVIA and the Rare Disease Innovations Institute bring together different voices from patients, families and other stakeholders to highlight the importance of the patient voice in rare disease development – now and in the future.
Learn how rare disease patients and families have been impacted by the pandemic, and why listening to their voice now is more important than ever.