A RARE Patient Advocacy (un)Summit

Join us for a variety of engaging and educational online events, meet-ups, workshops and performances September 15-25, 2020 at Global Genes LIVE! A RARE Patient Advocacy (un)Summit. This two-week event will provide members of the rare disease community, stakeholders, and allies with opportunities to connect and engage with each other through interactive activities paired with educational programming. 

Participants will gain insights about the latest in rare disease innovations, best practices for advocating on an individual and organizational level, and strategic ways to accelerate change.

Be sure to visit our (un)Summit store to purchase your swag bag! $5 of your purchase will be donated to support rare disease families through RARE Patient Impact Grants.

Register now to experience new and exciting programming activities at Global Genes LIVE! Please note that all week one activities (September 15-20) will be livestreamed on Facebook and do not require a registration.

To make sure you don’t miss out on any of our livestream sessions, RSVP to our Facebook event!

Are you a patient or advocate? Receive a free registration code for Global Genes LIVE! here.

From: 09/15/2020 – To: 09/25/2020

Virtual – All Day Event

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