Rare Disease in the News

(Left to Right) Loretta Boniti, host
Tara Britt, NC Rare Disease Advisory Council, Assoc. Chair
Parvathy Krishnan, Dir. of Patient Engagement, Rare Disease Innovations Institute

Rare Disease is in the news! In Focus, a Spectrum News public affairs program, will feature North Carolina rare disease experts on Sunday, April 5, 2020 at 11:30 am. Loretta Boniti, host of In Focus, will interview Tara Britt about building rare disease coalitions and Parvathy Krishnan about patient advocacy.

Additional program guests include medical researchers and NC legislators who have backed rare disease bills.

In Focus, the top rated Sunday morning political talk show in Raleigh, airs new episodes every Sunday at 11:30 am and re-airs them at 8:30 pm.

There was plenty of conversation before and after the show was recorded. Rare disease proponents are passionate about their work. Enjoy some candid photos from behind-the-scenes.

Top Left: Loretta Boniti interviews NC Rep. Becky Carney and NC Senator Vickie Sawyer. Bottom Left: Charter Communications Government Affairs staff are focused on Tara and Parvathy’s interview. Right: Tara Britt and NC Rep. Becky Carney discuss the NC Rare Disease Advisory Council.

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