Our Mission

RDII is a global non-profit focused on educating, engaging and equipping the rare disease community. Through policy, tools and data we achieve a higher quality of life, accelerating diagnosis and enabling access and treatment

The Common Voice of Rare Disease

The Rare Disease Innovations Institute is proud to bring you “The Common Voice of Rare Disease”, our blog which will share stories of vision, impact and success around rare disease, nationally and abroad. See below for our latest posts or ‘continue reading’.Continue reading “The Common Voice of Rare Disease”

World Sickle Cell Day 2021

Topic Education for patients are their families with Sickle Cell Description Join RDII and Piedmont Health Services and Sickle Cell Agencies on Facebook live and YouTube as we Present World…

Manage Self Care – Webinar Registration

Topic Self - Care for Rare Disease parents #Rare #bonnellfoundation Description Let’s gather and unwind together. The pandemic has increased the stress families in the Rare Disease community are experiencing.Please…

Seattle Rare Disease Fair

SAVE THE DATE - Friday, June 4th and Saturday, June 5th, 2021 Join Born a Hero Research Foundation and Seattle Children’s Research Institute for this year’s virtual Seattle Rare Disease…

Phacilitate Webinar

THE EVOLUTION OF PATIENT VOICE AND ENGAGEMENT THROUGHOUT THE JOURNEY TO COMMERCIALISATION Date: 11th February 2021 Time: 4.00pm GMT | 11.00am EST | 8.00am PST HOW INDUSTRY, BIOTECHS AND PATIENTS CAN WORK…

Rare Disease Day 2021 at Syneos Health

7 Feb 20219 Feb 2021

Innovation in Rare Disease: Making Progress with Cell & Gene Therapies This Rare Disease Day, Syneos Health continues the drive to raise awareness of rare diseases and their impact on…

Rare Across America

24 Jan 202124 Jan 2021

WHENFebruary 22 - March 5, 2021 (Virtual Congressional meetings on March 3rd and 4th)WHATVirtual meetings with your Senators and Representative AND virtual advocacy events. Rare Disease Legislative Advocates (RDLA) organizes meetings…

Founder & President, Tara J. Britt, Finalist in Rare Voice Awards

12 Oct 202012 Oct 2020

Thank you to the rare disease community for nominating these amazing advocates who give rare disease patients a voice on Capitol Hill and in state government. A special thanks to the members of…

What are the opportunities and challenges for the regenerative medicine field as the world recovers from COVID-19?

25 Aug 20202 Sep 2020

We have all been inundated by webinars, podcasts and Zoom calls focused on identifying and navigating COVID-19 challenges. Based on what we have learned from the first five months of…

Tara J. Britt, President of RDII, Named in 11 Most Influential Women in Advanced Therapies

21 Aug 20202 Sep 2020

Celebrating women in advanced therapies... It’s important for our industry to inspire and attract female talent and to value the contribution of women in science if we’re going to achieve…

Rare Disease in the News

9 Mar 20202 Sep 2020

(Left to Right) Loretta Boniti, host Tara Britt, NC Rare Disease Advisory Council, Assoc. Chair Parvathy Krishnan, Dir. of Patient Engagement, Rare Disease Innovations Institute Rare Disease is in the…