Our Mission

RDII is a global non-profit focused on educating, engaging and equipping the rare disease community. Through policy, tools and data we achieve a higher quality of life, accelerating diagnosis and enabling access and treatment

The Common Voice of Rare Disease

The Rare Disease Innovations Institute is proud to bring you “The Common Voice of Rare Disease”, our blog which will share stories of vision, impact and success around rare disease, nationally and abroad. See below for our latest posts or ‘continue reading’.Continue reading “The Common Voice of Rare Disease”

Webinar Oct 22 11:00am est – The Patient Voice in Rare Disease Research

12 Oct 202015 Oct 2020

Webinar hosted by the Rare Disease Innovations Institute and IQVIA In rare disease research, patients and families are taking a seat at the table, providing real-life perspectives that are helping…

Founder & President, Tara J. Britt, Finalist in Rare Voice Awards

12 Oct 202012 Oct 2020

Thank you to the rare disease community for nominating these amazing advocates who give rare disease patients a voice on Capitol Hill and in state government. A special thanks to the members of…

A RARE Patient Advocacy (un)Summit

Join us for a variety of engaging and educational online events, meet-ups, workshops and performances September 15-25, 2020 at Global Genes LIVE! A RARE Patient Advocacy (un)Summit. This two-week event will provide…

What are the opportunities and challenges for the regenerative medicine field as the world recovers from COVID-19?

25 Aug 20202 Sep 2020

We have all been inundated by webinars, podcasts and Zoom calls focused on identifying and navigating COVID-19 challenges. Based on what we have learned from the first five months of…

Tara J. Britt, President of RDII, Named in 11 Most Influential Women in Advanced Therapies

21 Aug 20202 Sep 2020

Celebrating women in advanced therapies... It’s important for our industry to inspire and attract female talent and to value the contribution of women in science if we’re going to achieve…

RDII Participating in The 2020 Rare Fair

31 Jul 20202 Sep 2020

The Rare Fair is the only 100% inclusive, 100% virtual event designed for the international rare disease community. Join us! Register Here The Rare Fair is the only 100% virtual,…

Rare Disease in the News

9 Mar 20202 Sep 2020

(Left to Right) Loretta Boniti, host Tara Britt, NC Rare Disease Advisory Council, Assoc. Chair Parvathy Krishnan, Dir. of Patient Engagement, Rare Disease Innovations Institute Rare Disease is in the…

Rare Disease Day 2020 at Syneos Health

28 Feb 20202 Sep 2020

The Rare Disease Innovations Institute was honored to participate in the 2nd Annual Rare Disease Day Symposium hosted by Syneos Health in Research Triangle Park. Attendees filled the conference room…

Rare Disease Day 2020 at IQVIA

28 Feb 20202 Sep 2020

Rare Disease Day 2020 kicked off in Raleigh/Durham, NC with a packed house at IQVIA, who hosted “Patient Perspectives on Clinical Research in Rare Disease” for their employees. The panel…